Do people with marfan syndrome ever live long lives?

My husband of almost sixteen years has Marfan syndrome. He is 6′9" and very thin and is starting to get the concavity in his breastbone area and I can see the roof of his mouth thing happening because his teeth look subtly different.

We don’t have health insurance though I am actively looking for a job with insurance. He works remodeling houses (his dream – the only job he has had that he liked out of security and computers and other kinds of construction) for himself and comes home just dead tired after working.

I get it and I don’t mind it.

I just see him getting a tiny bit worse as the months go by and it angers me. I want him here to see our grandchildren and grow old with me.

I can’t imagine ever loving anyone else and I only want to be with him. We had problems then fought to save our marriage. If we then lose it over a genetic thing we can’t do anything about I don’t know if I will ever get over my rage.

We have three kids who so far do not have Marfan’s. Our son, 15, is 6′9" but given our heights that is not so weird. Our daughter and little son are not as hugely tall compared to their classmates but certainly are not short. And none of them has any symptoms of Marfan at all. Trust me I am grateful for that as that is a statistical miracle!

Just wondering if there are others out there with Marfan in the family scared for the future.
LOL. I can google and look at wikipedia. I was hoping to hear from family members, people with Marfan, and medical people about real-life experiences. Thanks, though, and I realize I didn’t make that clear in my question.

Technorati Tags: angers, classmates, concavity, family members, google, grandchildren, health insurance, insurance, life experiences, lol, looking for a job, marriage, miracle, People, quot, rage, sixteen years, teeth, three kids, tiny bit, wikipedia

Related Posts

• What do I do to improve my marriage after my husband told me he's seen his ex-fiance? My husband’s last relationship ended in 1998, we started dating in 2000 and got married in 2004. Our son was born in 2006. My husband is an adventurous person, he has a big passion for mountains and the outdoors. I don’t share that passion, but I am ok with him......
• if a guy did this to you (which he did to me), how would you get him back (because i want to)? okay so theres this guy i like whose a little older. his ex isnt that attractive but yet hes in love with her which is cute i think. but the other night we were talking and he said he liked me and i told him i liked him too which......
• Will "Fireproofing" help save my marriage if my husband hasn't ended affair? Can this book series impact him? I love my husband and we have young kids and I'm not ready to end it. I'm thinking his affair is a mid life crisis thing even though he is 35. I think we can work through the bad for the sake of our kids. I just don't know how......
• i don't know if any of you will believe me but just read the question? ok here my life story i was born 1605 when i was four years old i got lost i had walked up to a house and knocked on the door a guy greeted me and let me in the next thing i knew he grabbed me by the arm and......
• Should I leave cheating husband for my ex that still love me? or try to save marriage with no children involve I caught my husband a couple times cheating and he always pressure me not to leave him, but I do not have any trust anymore. We do not have any children. Now my ex that i was with for 5 years is still in love with me, he has been......
• Want to save marriage after serious tebulants. And I still a love her and the two kids.? She does nt want to try any more because she is went out last weekend and met this guy whom she said she would be happy to see again. Now I know I have messed up in the past. I know the importance of family. I have been separated for......
• Isn't this basically what all athesits tell Christians summed up? With the Bible in hand into bed did I creep To read a few chapters before going to sleep As my eyelids grew heavy I heard a faint sound I held onto the good book and turned around I saw a slight movement come out of the night I jumped......

Related Websites

• Review Vitus (movie) Vitus is a charming movie, full of love, and I highly recommend it, if you have not seen it already. It is a slice of life I'd like to return to more than once. Beautifully filmed and acted. In 2007 it won the best Swiss Film Prize (Fredi M. Murer......
• Wifey 101: Ask And Ye Shall Receive Ahhh men and women...Mars and Venus. It is totally amazing how people can be so different. Just one little difference in chromosomes puts a man and a woman on opposite sides of the spectrum in so many cases. I am no way an expert on marriage, especially considering I have......
• That old question: Work or stay home? Last week, MoneyNing posed a question to his readers: Should I be a work at home Mom? Of course the first thing that came to my mind was the iconic 1980's movie, Mr. Mom. Personally, I would love to be a stay at home "mom" and in some ways,......
• The Tiger Zoo [/caption] With five weeks remaining in the aughts, pre-teens, double zeroes or whatever we end up calling the 2000s, the title for "Biggest Sports Story of the Decade" was up for grabs. Michael Vick? Tim Donaghy? The Mitchell report? The Artest Melee? Barry Bonds? Pat Tillman? Eagle, Colorado? Roger Clemens?......
• Three Basic Link Building Strategies Relevant links from other websites are the foundation of any decent ranking in the search engines. Finding those links, however, can be a daunting task at first. These three strategies are the basic stuff for helping newer web sites gain one way links. If you're not quite sure how to......
• What You Need To Know About Being Sued Personal Finance blogger Lazy Man & Money is being sued by a multi-level marketing company called MonaVie that sells a very expensive juice. The crux of the matter is that Lazy Man is highly skeptical of the claims the company makes about the product and the company is trying to......
• The Elusive Practice Of Search Engine Optimization Search engine technology has completely revolutionized the way we retrieve relevant information. Mastering the algorithms that drive these marvels of technology is the challenge, and assures the webmaster complete marketing success. In 1990, Alan Emtage at McGill University developed the first search engine, named Archie. Its purpose was to create......

Tagged with: angers • classmates • concavity • family members • google • grandchildren • health insurance • insurance • life experiences • lol • looking for a job • marriage • miracle • People • quot • rage • sixteen years • teeth • three kids • tiny bit • wikipedia

Filed under: How To Save A Marriage

Like this post? Subscribe to my RSS feed and get loads more!